‘I won and my baby’s alive’

By Jeff Bolichowski, The Windsor Star:

He’s breathing without a ventilator, Maraachli said, after surgery in St. Louis to perform the airway-opening tracheotomy his family sought but couldn’t get in Canada as they battled to bring Joseph home to die.

“I feel victorious,” Maraachli told The Star, smiling broadly as he stood by Joseph’s crib. “I feel I won and my baby’s alive.”

But he’s also been left with questions about why he and wife Sana Nader had to go to the U.S. for help.

“That’s what makes me mad,” he said. “Why I have to travel to St. Louis?

“I trust my medical system. We have a perfect medical system in Ontario.”

But the doctors in London, he said, let him down.

He’s not angry at the hospital itself, he said, but he feels he’s owed an explanation for the decision to refuse Joseph the tracheotomy.

He isn’t sure how long Joseph will live. And he declined to guess how much time he and his son have left.

“That’s by God and by him,” he said, his tone calm and positive. “I never think about that and I don’t think about (that) day.”

[...]

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